Poo galore (Day -4)

Just a quick update today, as I have not a moments rest.
Tuesday night Tim stayed with Max - they apparently had a great night together. At 7.30am I relieved Tim of his duties only to find both of them sleeping soundly. When I checked more closely on Max he had done a massive runny poo which soaked through all clothes, bed and into his lines!!! We had to bath him (which he hated of course) and have all his lines changed. This was the first of....well I stopped counting after 20 lots of poos. It doesn't help that the chemo affected poo has started eating away at his bottom, so poo is extemely painful when it touches his skin. Also changing his nappy (literally every 30 minutes) we have a screaming little man "No mummy no, sore so sore". I have to have nurses help me hold him down each time. So terribly unpleasant for us both. Unfortunately there is nothing they can do, but pain management....and it's only going to get worse. Blisters will emerge as the skin breaks down further.....I so hate having to change him, clean him and cream him all the time. Morphene will be ordered shortly (goes to show how much it can hurt!). Vomiting is a breeze compared to this.

Vomit count: 2
Diarrhoea: 20+ and counting....

Cathetar went in yesterday. Horrible horrible horrible. One Dr had 2 failed attempts. Another Dr had 2 failed attempts, but once SIX of us (2 Dr's, 2 nurses, distraction therapist and myself) were able to pin him down amidst his piercing shreeking, we were finally successful. We have since discovered that Midazolam (happy, relaxing drug) does not work for Max......and there is nothing else to try. CRAP!

ATG starts at 3pm this arvo. This is a serious drug, which runs over 6 hours (for 4 days) and Max has to be monitered extremely closely with obs taken every 10 minutes. I've been told Max will really start feeling poorly with this. High temperatures, shaking fits, severe allergic reactions, welts, blood pressure problems, breathing difficulties, and rashes.....along with the vomiting and constant diarrhoea from the other drugs......we are in for a real rollercoaster ride over the next few days (at least).

We have received some fantastic presents which has really cheered Max up:
Lissy and Leigh - the laminated family photos are so wonderful, really spruses up our room. Along with the cool cars!
Yvonne - transformers here we come! Max has mastered them already and loves them so!
Aunty Jude (Judah) and John and Heather beautiful cards which are displayed on the wall!

May have forgotten to mention some things, but as you can imagine no sleep has turned my memory/brain to a gooey mush......oh must dash another poo has reared its ugly head!