Thankyous to:
Billy & Carly for your extremely thoughtful gifts. Max will wear his personalized singlet with pride.
Cheers,
Tim
Our son Max ‘the strong one’ was diagnosed with a rare genetic disorder, Wiskott Aldrich Syndrome (WAS). The only cure is via bone marrow transplantation, which carries its own risks. Max underwent a cord blood transplant in 2010. Unfortunately, he now suffers from chronic Graft vs Host Disease (GvHD) which he acquired as a consequence of the transplant. We have set up this blog to document Max’s treatment and eventual cure of this condition.
Hi Bee, Max and Tim,
ReplyDeleteQuiet days are the best days in the transplant room. (Although how quiet can it really be with all those IV Pumps running and beeping) You'll want to chuck those IV poles out the window after this is all done :-)
Glad to see Max "The Strong" is doing well. You are now almost 2 weeks into this and we're all praying for those stem cells to set up shop and start making those neutrophils. Keep up the good fight and better days are truly ahead of you and your family. Thoughts and prayers from the USA...
Jay and Evan Sivigny
Oh what beautiful smiles from you both.It is good to hear that Thursday was calm.
ReplyDeleteLove Aunty Debxxx
Yay! Glad to hear it was a good day! Max is still in our prayers every night!
ReplyDeleteTim you are quite a camera person.....well you have such good subjects to photograph!!Just about need a wide angle lens to get those smiles in?Enjoy time out tonight.
ReplyDeletexxxxxxxxxxxxxxxxxSandra and Peter