I came down with a nasty cold last Sunday, so I have tried to be with Max as little as possible. It has been really really tough, particularly as Max has taken a turn for the worse and just wants hugs from me. Not being able to do that is completely ripping my heart apart.
His skin is shocking, peeling again, extremely red and very itchy.
His bowels are also shocking...one nurse actually mentioned the word 'offensive' in her description of his motions! Whether or not this is a good thing, I just got word today that Max has tested positive for Rotavirus. At least there is a possible explaination for his reamergance of his terrible eruptions.....but of course this is not a good thing for Max with his low immunity etc......
To cap off a crap week...we have been booted out of our room T3 and moved to the other end of the ward in the old BMT unit (room S1). When I say old BMT unit, this is no understatement. It really is horrid. Our new room is smaller than the last one; there is no parent bed, just a fold out chair....and when flushed, the toilet flushes continuously. A plumber came in this morning with all his dirty tools (talk about trying to keep things hygenic) and attempted to fix it. Upon completion he said, "you just need to fiddle with it a bit and it will eventually work....you know this is an old building?".....NO SH#T SHERLOCK!! I am not in a happy place right now, so excuse me!
So from a potential discharge this week, we are now once again in here for who knows how long........
I do want to take this opportunity to thank everyone who has helped out with looking after Max while I have put myself in isolation at Ronald Mac House (Oma, Opa, Mawa, Mapa, Louie). You are all without a doubt lifesavers and we love you immensely.
Thankyou to
- Ames and Bruno for the fabulous meals and cakes
- Granny Pat for the card and the soup - I'll be having it tonight!
- Ian and Elsa for the lovely card
- Benjamin (and Mum and Dad) for the cool puppets!
Shit and Sherlock indeed!!Well hopefully the Sherlocks are onto Max..this is just an intermission to your homecoming.Patience is a great virtue;and frustration is to be avoided(if possible!)As they say in the classics we are all cheering for you...is your team playing this week Tim and Max??Try be kind to the plumber,he is on mega dollars but his his reality is stuck in the S bend..such is life
ReplyDeletehang in there Trio
xxxxsandra and Peter
Hey Bee,
ReplyDeleteSometimes it seems like the sh** is everywhere. This too will pass, may God grant you the strength you need to get through to the good times. Am sounding very religious, but hope you get the kind wishes and hopeful dreams we are all sending you. Max is a tough little guy, hang in there.
Love,
Sue xx
P.S. Who do we complain to or petition to get you back into the nice room? We can start an uprising, just give the word!
ReplyDeletexx
Hi Bee,
ReplyDeleteBeen following your posts from afar, but feel close in spirit. I hope you and Max are on the mend soon and back home before you know it.
Take care,
Robin (& little J.P.)
Bee,
ReplyDeleteSorry to hear about the cold. Timing is never good for a cold during a BMT. Hoping that Max can clear the Rotavirus and that the all important Day 100 arrives and Max is turning the corner for the better. Extra prayers for the GVHD to begin to taper.
Jay Sivigny
So sorry to hear about the setbacks, Bee. Why in the world would they boot you out of your room? That just seems weird. Anyways, we're still praying for y'all. Hopefully the rotavirus explains things and once it's taken care of, you'll be back on track to get home.
ReplyDeleteHang in there!
Paige
Things will get better soon - you are all too special and too loved for it to go on for much longer! But in the meantime take care of yourselves and know that our love, prayers and thoughts are always with you Timmy, Bee and Max.
ReplyDeleteLove Cath and Jimmy xoxoxoxoxoxoxoxoxoxoxoxoxo
Hey you Musketeers. I hope your cold is better Bee, and that our boy is feeling better too. How goes it in there? Holy crap Batman, not fair to stick you down the cheap end of the plane. Protest!And get back to your happy healthy selves - please! Big love, Brian Julia & Co
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