Another day, another overflowing social calendar. Max had visits today from the physiotherapist, the social worker, oma, opa and mapa. Until we leave hospital, Max will have physiotherapy sessions a couple of times a week to try and get his body back into gameday shape. Given that he has spent close to the last four weeks in bed he did exceptionally well in today's session to stand for 20 minutes playing toy car park manager.
Max has let it be known that jigsaw puzzles with less than 50 pieces are no longer a challenge to him anymore. Today he received his first 100 jigsaw piece puzzle. Needless to say it did not stay unsolved for very long.
With Max having achieved neutrophil counts of over 0.5 for more than three consecutive days his transplant has now reached the stage of 'engraftment'. This is confirmation that the donor cord blood cells have found their way to the inside of Max's bones and have started producing new blood cells and is another major milestone on Max's road to recovery. It also means that visiting doctors, nurses and other staff no longer have to wear surgical masks in the room, which Max certainly prefers. As a consequence of the good neutrophil counts, the doctors have decided to take Max off his antibiotics and reduce the strength of his G-CSF (it boosts white blood cell production) injection. If this goes well, they'll take him off the antifungal drug 'amphotericin' later this week. We also lowered his Morphine dosage, and unlike last week, he showed no additional signs of discomfort afterwards.
The latest counts:
White cell count: 2.6 (6.0-17.0)
Neutrophils: 1.73 ** (1.5-8.5)
Haemoglobin: 89 (110-140) *
Platelets: 13 (150-400) *
Neutrophils: 1.73 ** (1.5-8.5)
Haemoglobin: 89 (110-140) *
Platelets: 13 (150-400) *
Normal ranges in brackets
* transfusions are topping these levels up at the moment, so they are not a true indication of where he is at.
* transfusions are topping these levels up at the moment, so they are not a true indication of where he is at.
** Down a little but given the previous big jump, it was to be expected.
Thankyous
- To Marg and John and the rest of the clan for the cool magnetic book and LEGO!!!.
cheers,
Tim
YAY!!!! So glad to hear that he is engrafting :) Congrats sweet Max!! And congrats to Bee and Tim..I know this is a huge day for you guys!! Its SOO exciting! Even though we know our babies arent completely out of the woods it is still a wonderful day when you find out that atleast it didnt reject! :) Lots of love and prayers for all of you :) This blog made me smile for you all :)
ReplyDeleteThank you to they donor of those fantastic cells that are knitting our Max a new Immune System! Knit two, pearl one - they are obviously doing a very nice job.
ReplyDeleteLove to you all, Happy Easter - does the Bunny make it in without a mask too? Do you guys celebrate the bunny?
Chocolate is good for cellular multiplication I believe (and for Mummys and Daddys too!!)
Sue xx
Awesome! Great news! Each milestone is a great step forward. One more day closer to a normal childhood. :-D Max is in our prayers every night!
ReplyDeleteFantastic news! Congratulations on this great day.
ReplyDeleteHope to see Max going home soon with his new immune system growing in full swing.
Take care,
Sumathi
News we like to hear...bravo!!Seems chocolate is good;thats good.nobody needs to be in denial over Easter!!I am about to lay down the gauntlet re jigsaw puzzles....Max just you wait!!!
ReplyDeletexxxxxxxxxxxxxxxxxSandra and Peter