(It's Tim again, chipping in to give Bee another break from blog duties)
Last night, given Max’s poo issues we both decided to stay the night. Max did sleep most of the night although he did wake himself up when he needed to be changed which turned out to be a regular occurrence.
This morning Max was seen to by the Stoma nurse who had some good advice on treating the deteriorating skin on Max’s backside. Unfortunately, Bianca and the nurse could not convince him to take a salt bath, which are apparently supposed to help a lot with the healing of broken down skin. We'll have another crack at it tomorrow.
Today was very similar to yesterday, periods of calm interspersed with harrowing exercises in cleaning Max’s backside. Max is on a Morphine drip to help ease his pain, which the nurses can give a little boost to prior to changing his ‘bluey’. Even with the drugs, it is still a very painful undertaking for Max. I cannot really comprehend the level of pain that he must be in, and yet, the strong little boy that he is, he very quickly settles himself down within a couple of minutes and gets back to watching Dora as if nothing had happened.
Speaking of strong, Bianca has put in a mighty effort this past week. With me being not 100% and still at work, she has taken on the lion’s share of looking after and spending time with Max. I think that the relative ease in which Max has acclimitised to life in isolation is largely due to her awesome mothering skills and incredible endurance. And not only that, she has also maintained this first class blog! She truly is an amazing woman. Now that I am on leave from work, hopefully I can give her a bit of a break before we head into the actual transplant.
We have a few big days coming up. We’ll update you on the road ahead over the weekend.
Before I sign out, some thank yous are called for:
• To Aunty Cheryle for the lovely, just cooked meal and other goodies.
• To Cus (Pip) for the selection of DVDs. All winners, no filler.
• To Benjamin Morley (with a little help from his folks Bec and Dave) for the Dr Suess game
Subscribe to:
Post Comments (Atom)
Stick in there parents. This was the HARDEST part of the whole transplant, seeing your baby in pain. It will only get better!
ReplyDeleteOur prayers go out to you! Be strong!
O.K now we are signed up to google account.Just needed a 25 year son around/left brain/right brain/another brain!!He was polite!!!Hav e you thought of a salt water pistol activity in the bathroom??Well it could be quite tension relieving?..prob not a medio idea??The salt water bit has to be very inviting...colour in the water??maybe a water pistol in the tub/set up a target...go for it.You are both so strong..you can do it.................
ReplyDeleteYou will do it
Love and bubbles
Sandra and Peter
Ugh, I will never forget changing those diapers. To make matters worse, the cream they gave us to protect Ayden's bottom was so dense that it was nearly impossible to get off, so the diaper changes took even longer than they normally would have. Don't worry, it gets better and better the further out you get. Y'all are in our prayers!
ReplyDeleteMax is such a champion, bouncing back from each change to watch his Dora. I am sending all our love and wishes and hope this is a short phase moving into a better time of it all for all three of you. Are you allowed to use a Zinc-based powder like Curash? I always found this better than creams as it wasn't like icing to try and get it off. Mack had one particularly bad pressure sore when in nappies which years later I realised was WAS-related but I spent a lot of wasted guilt on that . . . . .
ReplyDeleteLove you guys, power on!
Sue xxx
Reading your blogs and admiring everyone involved in this traumatic procedure.
ReplyDeleteWhat a feisty young man !
You are both in my thoughts. I wish you much courage.
Hugs
Celia
Hi Tim, Bee and Max. In honour of their cousin, Griff and Evie have decided that they are going to have a Dora the Explorer viewing marathon this morning (it has only just gone 9am and we are already onto our 3rd episode). What is with that disproportionate head? I agree with you Tim on the T-shirt and hair cut! Griffin has asked if we can send Max a box of Dora band aids, as surely this will make him all better, so I will go on the hunt today. We love you all so much and not a moment goes by that we do not think of you all. Sending you lots of love and positivity, Jono, Karen, Griffin and Evie
ReplyDelete