Tuesday, April 6, 2010

Closer to rolling out the door (Day +22)

Hello everybody. The good news of the day is that it looks like Max has got his appetite back! He put away quite a bit of food today, including: a piece of vegemite toast (no crusts), a bowl of cornflakes, a mini pizza, 3 savoy crackers, a sausage, 4 potato gems, two chicken nuggets, a freddo frog and an easter egg. Not only that he also managed to throw back 3 bottles of orange juice. It's fair to say that he exceeded his Weight Watchers points for the day. If this rate of consumption were to continue we might have to roll him out of the hospital doors.


And just when might Max be walking, or rolling out as the case may be, of those hospital doors? Well in even better news, we were given a tentative date for being discharged! We won't spill the beans on the date until we have well and truly left the building as there are a million things that could happen between now and then. That said, the main doctor who has just returned from a two week trip to Europe (missing all of Max's hijinks), is very impressed with his progress. She warned us that Max has a long way to go before he is considered to be fully recovered from the transplant, as in at least 12 to 18 months away, but for now he is very close to being able to go home, or in our case, to take up temporary accomodation in an apartment across the road. We have decided that in the week or so after being discharged that we would like to be close by to the hospital due to the daily trips Max will be required to make back to the oncology ward for blood tests, tranfusions, to say hello to his many girlfriends (ie the nursing staff), etc.

The Numbers:


White cell count: 2.7 (6.0-17.0) **
Neutrophils:  1.35 (1.5-8.5) **
Haemoglobin: 91 (110-140) *
Platelets: 56 (150-400) *
* transfusions are topping these levels up at the moment, so they are not a true indication of where he is at.
**  These numbers have been falling of late but there's no need to panic just yet. We were told to expect this to happen once they stopped giving Max the G-CFS (white blood cell booster stuff)
His blood pressure is also a little high (mean of 90) but we have been told that this could simply be a side effect of the cyclosporin. They are treating the high blood pressure with drugs.


Thankyous:
  • Bec, Dave and Benjamin for groovy glow stars
  • Connor (with help from Eph and Mani) for the easter bunny
  • Aunty Juda for, once again, another beautiful card.
Cheers,

Tim

5 comments:

  1. Yay! That is great news!!! I'm so excited for you guys! I know he's not "out of the woods" yet, as they say, but every step is a step closer to the day he's completely better and living a normal life. Still in our prayers!

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  2. Hi Bianca, Tim and the incredible little Max,

    Wow, I have just read your amazing journey. As I was reading your stories, amid the tears and laughter (thank you for the videos....gorgeous!!), I was thinking what absolutely incredible people you all are. I agree Bianca, we don't realise what is going on behind the closed doors at the Royal Children's Hospital....angels at work!

    I know you all have quite a journey to go, but it sounds like little Max is making fabulous progress. Before long it will be a distant memory (as the celebrations begin!).

    Tim, looks like you have a rising Hawthorn star in the family :)

    Look after each other, and keep smiling. My thoughts are with you all.

    Caroline.

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  3. Wow, it seems amazing that you can be talking about going home so soon (well, across the road anyway!). Max is a champion. I am so happy for all of you (not just the three of you but your extended family who so clearly love you all and do so much to help!). Where do we get Max a trophy for such good work and excellent results! Now I am waiting for the videos of a) The flat across the road and b) The garden at home after the Garden Fairies attended. Hope to see them (with Max in them!) very soon.
    Yaay Team Max.
    Love,
    Sue xx

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  4. EXCELLENT NEWS!!!BRAVO AND CHEERS!!

    xxxxxxxxxxxxxsandra and peter

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  5. Great news !
    Max has certainly taken giant steps these past weeks.
    I hope you all are "out the door" as planned.
    I will have you in my thoughts in the coming months.
    My best to you all
    Celia

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