Slowly getting back on his feet (Day +104)

So where to begin? Not a lot has changed since we last updated the blog. Max's skin is still covered in the GVHD rash. For the most part, it has settled down but it is still quite raised and angry around his knee caps, hands and feet. His skin is still quite dry but Bee has done a brilliant job in maintaining his twice daily moisturising  regime so there's not been the wholesale shedding of skin that we've seen on past cycles of the rash. We would have hoped by now that the MFF would have settled the GVHD down but it hasn't turned out to be the case. This week we should find out from the Doctors what the next step is in his treatment for the GVHD. Stay tuned.

His poo is thankfully settling down again. For those of you who are interested in such things, he is back to one to two poos of a thick mashed potato consistency a day. This is quite a relief. The even better news is that Max's spirits continue to rise. Personality wise, he is back to cracking jokes, singing songs and flirting with the nurses. I don't think he's smiled so regulalry since he's been in hospital. Thanks to a lot of persistence from Bee and the physio, we have also had some success with getting him moving more and up and out of bed. We have borrowed a foam mat and each day have been getting Max to walk (with help) from his bed to the mat for a play session. It's fantastic to see him up and out of bed.

His happiness and improved mobility have certainly made it a lot easier to face the reality that he'll be spending his third birthday in hospital. We are looking forward to celebrating with him this special day on Tuesday. We regret that you will be unable to join us but we promise to make it up to you next year with the mother of all fourth birthday parties. We'll try and update the blog later on this week with photos of his big day.

Thankyous

Fi, Tim & Fletch - for the cars
Inge, Erich, Thomas & Klaus - for the cars
Dave - for the big car
Deb, David & Natalia - for Max's early birthday gifts
Julia, Brian & Family - for the books & DVD
Toni & Knut - for the treasure chest
Heidi, Trav, Liv & Chris - for the clock and book.
Amy & Bruno - for the book & cake
Gramps & Poppi - for the gardening